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dc.contributor.author | Martinez-Millana, Antonio | es_ES |
dc.contributor.author | Zettl, Annabel | es_ES |
dc.contributor.author | Floch, Jacqueline | es_ES |
dc.contributor.author | Calvo-Lerma, Joaquim | es_ES |
dc.contributor.author | Sevillano, Jose Luis | es_ES |
dc.contributor.author | Ribes-Koninckx, Carmen | es_ES |
dc.contributor.author | Traver Salcedo, Vicente | es_ES |
dc.date.accessioned | 2021-01-05T04:31:23Z | |
dc.date.available | 2021-01-05T04:31:23Z | |
dc.date.issued | 2019-04-18 | es_ES |
dc.identifier.uri | http://hdl.handle.net/10251/158240 | |
dc.description.abstract | [EN] Background: Remote care services and patient empowerment have boosted mobile health (mHealth). A study of user needs related to mHealth for pediatric cystic fibrosis (PCF) identified the set of preferred features mobile apps should support; however, the potential use of PCF apps and their suitability to fit into PCF clinical management remains unexplored. Objective: We examine whether PCF holds potential for the implementation of mHealth care. Methods: The study is based on a literature review and qualitative analysis of content and was conducted in two parts: (1) we reviewed scientific and gray literature to explore how European countries manage PCF and conducted a qualitative study of 6 PCF units and (2) we performed a systematic review of apps available in the myhealthapps.net repository searching for cystic fibrosis (CF) management and nutrition apps, which we analyzed for characteristics, business models, number of downloads, and usability. Results: European CF routine care guidelines are acknowledged in most European countries, and treatments are fully covered in almost all countries. The majority of teams in CF units are interdisciplinary. With respect to the systematic review of apps, we reviewed 12 apps for CF management and 9 for general nutrition management in the myhealthapps.net directory. All analyzed apps provided functionalities for recording aspects related to the disease and nutrition such as medication, meals, measurements, reminders, and educational material. None of the apps reviewed in this study supported pancreatic enzyme replacement therapy. CF apps proved to be less appealing and usable than nutrition apps (2.66 [SD 1.15] vs 4.01 [SD 0.90]; P<.001, z-value: ¿2.6). User needs detected in previous research are partially matched by current apps for CF management. Conclusions: The health care context for PCF is a unique opportunity for the adoption of mHealth. Well-established clinical guidelines, heterogeneous clinical teams, and coverage by national health care systems provide a suitable scenario for the use of mHealth solutions. However, available apps for CF self-management do not cover essential aspects such as nutrition and education. To increase the adoption of mHealth for CF self-management, new apps should include these features. | es_ES |
dc.description.sponsorship | The authors appreciate the commitment of the European Commission MyCyFAPP (H2020-643806) project consortium during concept development and execution of this research. The authors also wish to acknowledge the ITACA Institute (Universitat Politecnica de Valencia) for making the publication of this paper possible through the Excellence Support program for the publication in high-impact international journals. | es_ES |
dc.language | Inglés | es_ES |
dc.publisher | JMIR Publications | es_ES |
dc.relation.ispartof | JMIR mHealth and uHealth | es_ES |
dc.rights | Reconocimiento (by) | es_ES |
dc.subject | MHealth | es_ES |
dc.subject | Cystic fibrosis | es_ES |
dc.subject | Health care systems | es_ES |
dc.subject | User requirements | es_ES |
dc.subject | Apps | es_ES |
dc.subject | Market analysis | es_ES |
dc.subject.classification | TECNOLOGIA ELECTRONICA | es_ES |
dc.subject.classification | TECNOLOGIA DE ALIMENTOS | es_ES |
dc.title | The Potential of Self-Management mHealth for Pediatric Cystic Fibrosis: Mixed-Methods Study for Health Care and App Assessment | es_ES |
dc.type | Artículo | es_ES |
dc.identifier.doi | 10.2196/13362 | es_ES |
dc.relation.projectID | info:eu-repo/grantAgreement/EC/H2020/643806/EU/Innovative approach for self-management and social welfare of Cystic Fibrosis patients in Europe: development, validation and implementation of a telematics tool./ | es_ES |
dc.rights.accessRights | Abierto | es_ES |
dc.contributor.affiliation | Universitat Politècnica de València. Instituto Universitario de Ingeniería de Alimentos para el Desarrollo - Institut Universitari d'Enginyeria d'Aliments per al Desenvolupament | es_ES |
dc.contributor.affiliation | Universitat Politècnica de València. Departamento de Ingeniería Electrónica - Departament d'Enginyeria Electrònica | es_ES |
dc.description.bibliographicCitation | Martinez-Millana, A.; Zettl, A.; Floch, J.; Calvo-Lerma, J.; Sevillano, JL.; Ribes-Koninckx, C.; Traver Salcedo, V. (2019). The Potential of Self-Management mHealth for Pediatric Cystic Fibrosis: Mixed-Methods Study for Health Care and App Assessment. JMIR mHealth and uHealth. 7(4):1-12. https://doi.org/10.2196/13362 | es_ES |
dc.description.accrualMethod | S | es_ES |
dc.relation.publisherversion | https://doi.org/10.2196/13362 | es_ES |
dc.description.upvformatpinicio | 1 | es_ES |
dc.description.upvformatpfin | 12 | es_ES |
dc.type.version | info:eu-repo/semantics/publishedVersion | es_ES |
dc.description.volume | 7 | es_ES |
dc.description.issue | 4 | es_ES |
dc.identifier.eissn | 2291-5222 | es_ES |
dc.identifier.pmid | 30998222 | es_ES |
dc.identifier.pmcid | PMC6495294 | es_ES |
dc.relation.pasarela | S\383750 | es_ES |
dc.contributor.funder | European Commission | es_ES |
dc.description.references | World Health Organization20112019-04-09New horizons for health through mobile technologies. Global observatory for eHealth series, volume 3 https://www.who.int/goe/publications/goe_mhealth_web.pdf | es_ES |
dc.description.references | CocosilaMArcherNBLED 2009 Proceedings20092019-04-09An empirical investigation of mobile health adoption in preventive interventions https://pdfs.semanticscholar.org/75d3/8902104741e225414955c06409f6eae7e846.pdf | es_ES |
dc.description.references | MyCyFAPP2018-09-27http://www.mycyfapp.eu/index.php/en/ | es_ES |
dc.description.references | European Cystic Fibrosis Society2019-04-10ECFS Patient Registry Annual Data Report 2016 https://www.ecfs.eu/sites/default/files/general-content-images/working-groups/ecfs-patient-registry/ECFSPR_Report2016_06062018.pdf | es_ES |
dc.description.references | Dutch Cystic Fibrosis Registy Report 20172019-04-14https://www.ncfs.nl/bestanden/rapport-cf-registratie-2017.pdf | es_ES |
dc.description.references | Public Health England20172019-04-10NHS Newborn Blood Spot Screening Programme: managing positive results from cystic fibrosis screening https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/642329/Managing_positive_results_from_cystic_fibrosis_screening_2017.pdf | es_ES |
dc.description.references | MyHealthApps Directory2019-04-10http://myhealthapps.net/ | es_ES |
dc.description.references | European Commission2013092019-04-10Commission staff working document: report on health inequalities in the European Union https://ec.europa.eu/health/sites/health/files/social_determinants/docs/report_healthinequalities_swd_2013_328_en.pdf | es_ES |