Kaul A, Gordon C, Crow MK, Touma Z, Urowitz MB, van Vollenhoven R, Ruiz-Irastorza G, Hughes G (2016) Systemic lupus erythematosus. Nat Rev Dis Prim 2:16039. https://doi.org/10.1038/nrdp.2016.39
Cervera R, Doria A, Amoura Z, Khamashta M, Schneider M, Guillemin F, Maurel F, Garofano A, Roset M, Perna A, Murray M, Schmitt C, Boucot I (2014) Patterns of systemic lupus erythematosus expression in Europe. Autoimmun Rev 13:621–629
Seoane-Mato D, Sánchez-Piedra C, Díaz-González F, Bustabad S (2018) Prevalence of rheumatic diseases in the adult population in Spain. EPISER 2016 study. Ann Rheum Dis 77:535–536
[+]
Kaul A, Gordon C, Crow MK, Touma Z, Urowitz MB, van Vollenhoven R, Ruiz-Irastorza G, Hughes G (2016) Systemic lupus erythematosus. Nat Rev Dis Prim 2:16039. https://doi.org/10.1038/nrdp.2016.39
Cervera R, Doria A, Amoura Z, Khamashta M, Schneider M, Guillemin F, Maurel F, Garofano A, Roset M, Perna A, Murray M, Schmitt C, Boucot I (2014) Patterns of systemic lupus erythematosus expression in Europe. Autoimmun Rev 13:621–629
Seoane-Mato D, Sánchez-Piedra C, Díaz-González F, Bustabad S (2018) Prevalence of rheumatic diseases in the adult population in Spain. EPISER 2016 study. Ann Rheum Dis 77:535–536
Cervera R, Rúa-Figueroa I, Gil-Aguado A, Sabio JM, Pallarés L, Hernández-Pastor LJ, Iglesias M (2013) Direct cost of management and treatment of active systemic lupus erythematosus and its flares in Spain: the LUCIE study. Rev Clínica Española 213:127–137. https://doi.org/10.1016/j.rce.2012.11.018
Chambers SA, Allen E, Rahman A, Isenberg D (2009) Damage and mortality in a group of British patients with systemic lupus erythematosus followed up for over 10 years. Rheumatology 48:673–675. https://doi.org/10.1093/rheumatology/kep062
Golder V, Hoi A (2017) Systemic lupus erythematosus: an update. Med J Aust 206:215–220. https://doi.org/10.5694/mja16.01229
Waldheim E, Ajeganova S, Bergman S, Frostegård J, Welin E (2018) Variation in pain related to systemic lupus erythematosus (SLE): a 7-year follow-up study. Clin Rheumatol 37:1825–1834. https://doi.org/10.1007/s10067-018-4079-1
Bexelius C, Wachtmeister K, Skare P, Jönsson L, Vollenhoven R (2013) Drivers of cost and health-related quality of life in patients with systemic lupus erythematosus (SLE): a Swedish nationwide study based on patient reports. Lupus 22:793–801. https://doi.org/10.1177/0961203313491849
Holloway L, Humphrey L, Heron L, Pilling C, Kitchen H, Højbjerre L, Strandberg-Larsen M, Hansen BB (2014) Patient-reported outcome measures for systemic lupus erythematosus clinical trials: a review of content validity, face validity and psychometric performance. Health Qual Life Outcomes 12:116. https://doi.org/10.1186/s12955-014-0116-1
Jolly M, Pickard AS, Block JA, Kumar RB, Mikolaitis RA, Wilke CT, Rodby RA, Fogg L, Sequeira W, Utset TO, Cash TF, Moldovan I, Katsaros E, Nicassio P, Ishimori ML, Kosinsky M, Merrill JT, Weisman MH, Wallace DJ (2012) Disease-specific patient reported outcome tools for systemic lupus erythematosus. YSARH 42:56–65. https://doi.org/10.1016/j.semarthrit.2011.12.005
Doward LC, McKenna SP, Whalley D et al (2009) The development of the L-QoL: a quality-of-life instrument specific to systemic lupus erythematosus. Ann Rheum Dis 68:196–200. https://doi.org/10.1136/ard.2007.086009
Yazdany J (2011) Health-related quality of life measurement in adult systemic lupus erythematosus: Lupus Quality of Life (LupusQoL), Systemic Lupus Erythematosus-Specific Quality of Life Questionnaire (SLEQOL), and Systemic Lupus Erythematosus Quality of Life Questionnaire. Arthritis Care Res (Hoboken) 63:S413–S419. https://doi.org/10.1002/acr.20636
Cho JH, Chang SH, Shin NH, Choi BY, Oh HJ, Yoon MJ, Lee EY, Lee EB, Lee TJ, Song YW (2014) Costs of illness and quality of life in patients with systemic lupus erythematosus in South Korea. Lupus 23:949–957. https://doi.org/10.1177/0961203314524849
Jones JT, Cunningham N, Kashikar-Zuck S, Brunner HI (2016) Pain, fatigue, and psychological impact on health-related quality of life in childhood-onset lupus. Arthritis Care Res 68:73–80. https://doi.org/10.1002/acr.22650
Schmeding A, Schneider M (2013) Fatigue, health-related quality of life and other patient-reported outcomes in systemic lupus erythematosus. Best Pract Res Clin Rheumatol 27:363–375. https://doi.org/10.1016/j.berh.2013.07.009
Roche PA, Klestov AC, Heim HM (2003) Description of stable pain in rheumatoid arthritis: a 6-year study. J Rheumatol 30:1733–1738
Katz JD, Senecal JL, Rivest C et al (1993) A simple severity of disease index for systemic lupus erythematosus. Lupus 2:119–123. https://doi.org/10.1177/096120339300200210
Hughes J, Verill R, Eisenhandler J et al (2004) Clinical risk groups (CRGs): a classification system for risk-adjusted capitation-based payment and health care management. Med Care 42:81–90
Vivas-Consuelo D, Usó-Talamantes R, Guadalajara-Olmeda N, Trillo-Mata JL, Sancho-Mestre C, Buigues-Pastor L (2014) Pharmaceutical cost management in an ambulatory setting using a risk adjustment tool. BMC Health Serv Res 14:462. https://doi.org/10.1186/1472-6963-14-462
EuroQol Group (1990) EuroQol—a new facility for the measurement of health-related quality of life. Health Policy:10109801
EuroQol Research (2015) EQ-5D-5L user guide. Basic Inf how to use EQ-5D-5L Instrum 28. doi: 1–25
Isenberg DA, Allen E, Farewell V, D'Cruz D, Alarcon GS, Aranow C, Bruce IN, Dooley MA, Fortin PR, Ginzler EM, Gladman DD, Hanly JG, Inanc M, Kalunian K, Khamashta M, Merrill JT, Nived O, Petri M, Ramsey-Goldman R, Sturfelt G, Urowitz M, Wallace DJ, Gordon C, Rahman A (2011) An assessment of disease flare in patients with systemic lupus erythematosus: a comparison of BILAG 2004 and the flare version of SELENA. Ann Rheum Dis 70:54–59. https://doi.org/10.1136/ard.2010.132068
Bombardier C, Gladman DD, Urowitz MB, Caron D, Chang CH, Austin A, Bell A, Bloch DA, Corey PN, Decker JL, Esdaile J, Fries JF, Ginzler EM, Goldsmith CH, Hochberg MC, Jones JV, Riche NGHL, Liang MH, Lockshin MD, Muenz LR, Sackett DL, Schur PH (1992) Derivation of the sledai. A disease activity index for lupus patients. Arthritis Rheum 35:630–640. https://doi.org/10.1002/art.1780350606
Gladman DD, Goldsmith CH, Urowitz MB, Bacon P, Fortin P, Ginzler E, Gordon C, Hanly JG, Isenberg DA, Petri M, Nived O, Snaith M, Sturfelt G (2000) The Systemic Lupus International Collaborating Clinics/American College of Rheumatology (SLICC/ACR) Damage Index for systemic lupus erythematosus international comparison. J Rheumatol 27:373–376
Lai JS, Beaumont JL, Jensen SE, Kaiser K, van Brunt DL, Kao AH, Chen SY (2017) An evaluation of health-related quality of life in patients with systemic lupus erythematosus using PROMIS and Neuro-QoL. Clin Rheumatol 36:555–562. https://doi.org/10.1007/s10067-016-3476-6
Aggarwal R, Wilke CT, Pickard AS et al (2009) Psychometric properties of the EuroQol-5D and short form-6D in patients with systemic lupus erythematosus. J Rheumatol 36:1209–1216. https://doi.org/10.3899/jrheum.081022
Carreras M, Ibern P, Coderch J, Sánchez I, Inoriza JM (2013) Estimating lifetime healthcare costs with morbidity data. BMC Health Serv Res 13:440. https://doi.org/10.1186/1472-6963-13-440
Doria A, Amoura Z, Cervera R, Khamastha MA, Schneider M, Richter J, Guillemin F, Kobelt G, Maurel F, Garofano A, Perna A, Murray M, Schmitt C, Boucot I (2014) Annual direct medical cost of active systemic lupus erythematosus in five European countries. Ann Rheum Dis 73:154–160. https://doi.org/10.1136/annrheumdis-2012-202443
Khamashta MA, Bruce IN, Gordon C, Isenberg DA, Ateka-Barrutia O, Gayed M, Donatti C, Guillermin AL, Foo J, Perna A (2014) The cost of care of systemic lupus erythematosus (SLE) in the UK: annual direct costs for adult SLE patients with active autoantibody-positive disease. Lupus 23:273–283. https://doi.org/10.1177/0961203313517407
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